Resources & Support

Everything you need in one place

Access trusted information, educational materials, and support networks to help you navigate ARDS

Resources & Support

Access trusted information, educational materials, and support networks to help you navigate ECMO treatment and recovery.

Patient Guides

Easy-to-understand guides about ARDS, treatment options, and what to expect during recovery.

  • What is ARDS? – A Patient’s Guide
  • Understanding Your ARDS Diagnosis
  • Treatment Options Explained
  • ICU Stay: What to Expect
  • Life After ARDS: Recovery Timeline
  • Managing Long-Term Effects

Educational Videos

Watch medical experts explain ARDS, caregiving tips, and recovery strategies.

  • ARDS 101: Understanding the Condition
  • Breathing Exercises for Recovery
  • Navigating the ICU Environment
  • Physical Therapy After ARDS
  • Nutrition for Lung Health
    Mental Health During Recovery

Support Groups

Connect with others who understand. Find local and online support groups.

  • Online ARDS Survivor Community
  • Weekly Virtual Support Meetings
  • Caregiver Support Network
  • Family Member Resources
  • Regional In-Person Groups
  • One-on-One Peer Mentoring

Downloadable Materials

Fact sheets, symptom trackers, and resources you can print and share.

  • ARDS Fact Sheet (PDF)
  • Medication Schedule Template
  • Questions for Your Doctor
  • Recovery Milestone Chart
  • Caregiver Handbook

ECMO Resources

Access trusted information, educational materials, and a support networks to help you navigate ECMO treatment and recovery.

  • ECMO Downloadable Materials
  • Videos
  • Survivor Stories
  • Support Group

Caregiver Resources

Support and guidance for family members and caregivers of ARDS patients.

  • Caregiver Self-Care Guide
  • Understanding ICU Equipment
  • Communicating with Medical Teams
  • Managing Stress and Burnout
  • Financial Resources for Families
  • Advance Care Planning

Need Help Right Now?

If you or a loved one is experiencing a medical emergency, seek emergency medical care immediately by calling 911 or going to your nearest emergency room.

Understanding ARDS (2025)

Introduction to ARDS – A Guide for Patients and Families

Understanding and Recovery from ARDS – A Caregiver’s Guide

ARDS and Sepsis – Understanding the critical link

Causes and complications of ARDS – A guide for patients and families

Caring for a child with ARDS – A guide for families

The many causes of ARDS – An informative guide

ARDS Glossary – Understanding ARDS Treatment Terminology

ARDS and ECMO Treatment – Understanding how ECMO Treatment Works

ARDS and Ventilators – Understanding how ventilator treatment works

ARDS and the Elderly – A guide for patients and families

External Resources

Trusted organizations providing additional ARDS information and support

American Lung Association

Comprehensive lung health resources

NIH ARDS Network

Research studies and clinical trials

Critical Care Recovery

Post-ICU rehabilitation resources

Society of Critical Care Medicine

Professional medical resources

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