ARDS WEEKLY SUPPORT NEWSLETTER
http://www.ards.org
12/11/00
I would like to start out by thanking you all for your
understanding and well-wishes last week. I am pleased to say that I
am feeling much better. And so, here is the newsletter for this
week.
Reminder - For those of you who have Microsoft Word, I have
also attached the newsletter as a Word file.
Special People in Critical Care
Balram Sharma underwent valve replacement and bypass surgery
recently and developed breathing problems which resulted with him
being put on a ventilator. He was on the ventilator for 5 days and
then taken off. He had started to eat and even walked a bit. He
again developed breathing problems and was put back on the
ventilator. His kidneys are beginning to function again and he is
requiring less oxygen at this point.
Becky's father was moved out of ICU and into intermediate
care last week. He has been off the ventilator for 4 days. His
saturation is staying in the 90% range unless he coughs and then he
does need some assistance by bagging. He is talking to the family by
plugging his trach. He is receiving some oxygen through the trach.
Betty Scranton is in ICU at Memorial Hospital in Lake
Charles, Louisiana. Prior to admission to Memorial Hospital she was
at another hospital where she was fighting a bad bladder infection
and progressed to pneumonia and ARDS. An exploratory surgery was
done and was negative for cause of infection. She was placed on a
ventilator and subsequently was transferred to Memorial Hospital. At
this point she is breathing with assist only. She can write
sometimes and can move. They are trying to wean her off the
ventilator.
On November 24, Carrie's grandmother was admitted to the
hospital with pneumonia. She was moved to ICU the second day, the
third day she was put on a ventilator. They performed a scope biopsy
and the ARDS diagnosis was made.
David Stokes has been diagnosed with ARDS and is in Mongomery
Baptist Hospital in Alabama. A biopsy was performed on David and we
haven't received the results yet.
Dorthdel Gaston continues her battle with ARDS in a Wisconsin
hospital. Family members are with Dorthdel as much as possible.
Dexter Barlow
is hospitalized at
Holmes Regional Medical Center in Melbourne, Florida, where he is
battling ARDS. He is still having some problems with weakness, but
is walking with the walker with assistance. His physical therapy is
progressing.
Franc Marmero is battling ARDS in Our Lady of Lourdes
Hospital in New Jersey.
Joyce Lester's friend Gunichi Yamashita (Yami) had open
heart surgery on November 15. He is 70 years old. He had two heart
attacks; one before surgery and one during surgery. On December 2nd
they were told he had ARDS. He is on 100% oxygen.
Justin West continues his battle with ARDS. He is on 100%
oxygen and his peep is at 52. He is very sick. He has an infection.
He is not doing very well at all. Justin continues to receive the
Cytoxin.
On November 17, Kenny was taken to the hospital in
Pensacola, Florida and diagnosed with aspiration pneumonia. At that
time he required a ventilator for assistance with breathing. He
progressed to ARDS. He is receiving antibiotics and a special
infection team has been called in. He is scheduled for a CAT scan to
help determine the path of future treatment. His lungs are
"shutting down" because of an air leak during a tube
insertion.
Kyle Geer has been hospitalized with ARDS complicated by
multiple organ failure. He is 15 years old. The last we heard, he
was out of PICU and breathing on his own.
Morgan Kurchak’s great aunt was admitted to the hospital
about the first of December due to pneumonia. She has been on the
ventilator and is scheduled for surgery on December 11 to have the
lower right part of her lung removed.
Roger Cannady's sister-in-law is in ARDS crisis in St. Luke's
Hospital in Springfield, Missouri. She was in a car accident and
then several days later had surgery to remove a cyst. Following the
surgery she developed ARDS.
Ruby has been moved to the LDS Hospital in Salt Lake City.
She is making progress regarding ARDS but some other problems have
arisen, including the discovery of some white brain matter damage.
Prayers of Sympathy
Roy Lee passed away on November 18th.
Debra Handville passed away on November 25th.
Betty Brown passed away on November 28th.
Survivor News
Becke Viada went home on her birthday December 3. Husband
Chuck writes "it is good to have her home and as feisty as
ever."
Betty Horan has been home for a week now. Her appetite is
improved and she is still eating her foods pureed. Betty's voice is
still very faint. Visiting nurses and physical therapist do come in
work with her.
Dave Perun is 38 years old and was diagnosed with ARDS. He is
in University Medical Center in Syracuse, New York. He has now
received a different diagnosis and is off the ventilator and
breathing on his own with oxygen.
Debby is now off the oxygen and she is no longer receiving
visiting nurses or physical therapy. Debby did have an episode of
nausea and vomiting and was readmitted to the hospital, at this
point it does not seem related to her cancer or her ARDS.
ARDS survivor, Diane Mack, was to have surgery to repair her
colostomy and remove the nephrostomy tube from her kidney. The
surgery was postponed until later.
Diane's 70-year-old mother, Evelyn, had her trach removed
on November 11 and she is able to talk and swallow. No further
updates on her condition were received.
Jerry Adamson’s feeding tube will soon be removed. A
meeting has been scheduled to discuss the possibility of releasing
him from the hospital.
Sandi is still weak. She is going to get her hair done this
week with her mother who she lives with. Sandi will be getting a
computer and able to communicate with us herself soon.
Stephanie Killinger has been off the vent. She was moved to a
regular room on December 3. She will go to rehab at University of
Pennsylvania.
Those Wishing to Communicate with Others
Preston Wilkinson is a 3 1/2 year ADRS survivor and hopes to
offer support to others who are going through that horrible
experience.
serp7@qwest.net
Other News
IMPORTANT ARDS INFORMATION
ARDS Review Article - The ARDS Support Center has
received an article that was printed in the New England
Journal of Medicine. It is titled "Medical
Progress: The Acute Respiratory Distress Syndrome"
which was written by Dr. Matthay and his colleague Dr. Lorraine
Ware. Dr. Matthay sent us the article. He is the ARDS Investigator
at Moffitt Hospital, which is affiliated with the University of
California, San Francisco. This center is part of the ARDSNetwork.
After reviewing the article, we find it to be the most comprehensive
and up-to-date article we have seen and encourage all those who have
a loved one in ARDS crisis to obtain a copy and discuss the article
with the attending hysicians.
The article appears in the New England Journal of
Medicine, Volume 342, Number 18, pp. 1334-1349 in the
May 4, 2000 issue of the magazine. Check with your hospital library
to see if they have this issue of the magazine
.
A copy of the
article may be purchased from the New England Journal of Medicine.
To do so log on to the Internet and enter www.nejm.org
on the address line. On the Home Page select "Search Past
Issues." The "Search the Journal" page will be
displayed. On the Author line enter "Matthay." The result
will be a display of nine items. You will find this article under
the caption, "2000: Volume 342." Click on the title of the
article and on the following display click on complete article.
This will give you the Customer Service and Ordering Information
form.
Another article in this issue that is of utmost importance is
titled "Ventilation with Lower Tidal Volumes as
Compared with Traditional Tidal Volumes for Acute Lung Injury and
the Acute Respiratory Distress Syndrome," which was
provided by the ARDSNetwork. You may view the abstract by clicking
on:
http://www.nejm.org/content/2000/0342/0018/1301.asp
Your doctors should be aware of this extremely important research
study.
ARDS Brochure: We need volunteers to deliver the brochures to
local hospital ICU’s, educational facilities, pulmonary
rehabilitation centers, etc. This is an excellent opportunity to
meet the professionals at these facilities and let them know that we
are out there and willing to help. We hope that you will find
facilities that are interested in having an outreach program for
families and patients going through the ARDS crisis. The brochure is
an excellent source of information that is easy for the layman to
understand. Please contact either Ken Jonah
kenjonah@comcast.net
or Wendy Jonah
wjonah@comcast.net
if you are interested in helping.
Also, the revised brochure which was further reviewed by the ARDS
Support Board of Medical Advisors to reflect the latest scientific
thinking, is now "live" on the website and can be accesses
by going to
www.ards.com
.
I pray that you have a good week, and I look forward to hearing
from you.
Warm Regards,
Diana Wagner